This website is intended for a European audience and is made available by Amgen.
This website is intended for a European audience and is made available by Amgen.
Since 2016, March has been recognised as NMOSD Awareness Month. To mark the occasion, each year, various patient advocacy groups have been spearheading initiatives aimed at spreading the word about the disease in and around Europe.
NMOSD in Focus has always supported this, championing better education and empowerment for those impacted by the disease. This year, the initiative continues, with a focus on…
NMOSD never comes on its own. It is multifaceted and complex. It impacts all aspects of life, from dealing with invisible symptoms, to experiencing mental health and pregnancy challenges, to managing family life and relationships.
In 2025, while continuing to raise disease awareness, and encouraging people living with the condition to listen to their bodies and talk to their doctor, NMOSD and its complexities are put into focus.
Through new, unfiltered patient stories and conversations with doctors, the campaign will delve deeper into the experiences and voices that matter most. New NMOSD resources are also available (see below) to support patients and carers on their unique journeys.
Together, let’s drive awareness of the many faces of NMOSD and empower every individual affected by this rare and challenging disease to take action and lead their own journey to better health outcomes.
Watch this ‘NMOSD and Me’ short video to learn more.
The journey with NMOSD is not just a medical one - it's deeply personal and touches every aspect of life. In this section of the website, patients living with the disease share their honest, unfiltered experiences, offering unique perspectives on how the condition has shaped their lives as they navigate their own journey.
Navigating the challenges with positivity
Embracing change and fostering self-love
How I advocate for myself and encourage others to do the same
Navigating the complexities of NMOSD can be overwhelming. To provide deeper insights and practical knowledge into topics that patients may want to learn more about, below you will find a series of expert-led videos. These are designed to arm you with actionable information so you can better advocate for appropriate support.
with Dr. Celia Oreja-Guevara
with Dr. Maria Sepulveda
with Dr. Joachim Havla
with Dr. Refik Pul
The following resources have been developed so you can get involved on social media or by putting up posters in your local area or workplace.
NMOSD in Focus aims to empower people living with the condition to listen to their bodies and discuss their NMOSD with their doctor.
People living with NMOSD often mention that they don’t feel comfortable sharing what could be clear NMOSD related symptoms with their doctors. Sometimes it’s because they don’t think these symptoms are related to NMOSD and other times because they don’t think it’s worth sharing with their doctor, especially if patients are already on treatment.
NMOSD is a lifelong condition, therefore it is critical to listen to your body and pay attention to new or worsening symptoms. It’s important to speak up and advocate for yourself if something does not feel right.
Who better to highlight the importance of all of this than the people who have been there? Souad, Leda, Elisabetta, Matthias and Els have all been diagnosed with NMOSD. Even though they all have a different story, they all agree that speaking to their doctor is critical, especially in a disease as rare as NMOSD. Watch the video below.
