This teaser video for NMOSD Awareness Month 2025 highlights the complexities of neuromyelitis optica spectrum disorder (NMOSD), featuring insights from leading neurologists and personal stories from patients across Europe. It emphasizes the physical, mental, and emotional challenges of living with NMOSD, while encouraging awareness, empowerment, and better outcomes for those affected.

NMOSD Awareness Month 2025

00:04 March is Neuromyelitis Optica Spectrum Disorder (NMOSD) Awareness Month

00:11 A whole month dedicated to patients and their carers, united to raise awareness of this often-debilitating condition

00:18 This year we are putting the complexities of NMOSD – and the voices that matter most – into focus

00:27 Dr. Maria Sepulveda Neurologist and Head of the NMOSD MOGAD Unit at Hospital Clinic of Barcelona, Spain

“Current research suggests that people with NMOSD suffer from other invisible symptoms. Pain, cognitive deficits, depression, fatigue, sexual disfunction are the main invisible symptoms in NMOSD”

00:46 Dr. Refik Pul Neurologist and Head of the MS Outpatient Clinic at Universitätsmedizin Essen, Essen, Germany

“In MS, everything is, if you compare it with Neuromyelitis optica spectrum disease everything is a bit slower, so you have time. But NMOSD is like very fast destruction, and this makes and difference in treatment because if you don’t treat the relapse very quickly then you have irreversible damage.”

01:12 Dr. Celia Oreja-Guevara Vice Chair of Neurology Hospital Clinico San Carlos Madrid, Spain

“When a patient would like to become pregnant it’s very important that we have a planned pregnancy. It means they should be one year stable, completely stable without any relapses, any new lesions in the MRI.”

01:28 Dr. Joachim Havla Neurologist and Senior Physician at LMU Hospital, Munich

“Optic neuritis is a very common symptom in NMOSD, 30% of the relapses in NMOSD are Optic neuritis.”

01:37 The journey with NMOSD is not just medical, it’s personal and touches every aspect of life

01:43 Leda Bresnov, Denmark

“Before I realised it was NMOSD, and the potential physical impact, I knew that I would fight as hard as I could so that I was capable of being a Mum. This was very much the message I was giving my kids.”

01:55 Matthia Fuchs, Germany

“I struggled with both the physical and mental aspects of NMOSD and so I decided to go to a therapist but told nobody about it.”

02:04 Souad Mazari, France

“The journey to diagnosis for someone with a disease as rare as NMOSD is normally quite long and painful. You are dealing with the unknown, and that’s very scary. I remember feeling very lonely and isolated.”

02:16 This March, let’s drive awareness of the many faces of NMOSD

02:22 and empower individuals affected by it to act and lead their own journey to better outcomes

02:29 NMOSD and

• Blurry vision
• Pregnancy
• Invisible Symptoms 
• Fatigue
• Chronic pain
• Hiccups
• Nausea
• Vomiting
• Sexual dysfunction
• Bladder problems 
• Paralysis 
• Trouble sleeping
• Family life and relationships
• Mental health

02:36 NMOSD and Me: Get Informed, Feel Empowered #NMOSDandMe #NMOSDAwarenessMonth

For more information and patient resources, visit: www.nmosd-in-focus.com