This website is intended for a European audience and is made available by Amgen.
This website is intended for a European audience and is made available by Amgen.
This section is designed to help you navigate the web for existing resources that may be useful and informative. Information on this page is not intended to be used as a substitute for medical care and should not be relied upon for the diagnosis or treatment of neuromyelitis optica spectrum disorder (NMOSD). If you have questions or concerns regarding your health, please contact your healthcare provider.
These resources are designed to empower individuals with NMOSD by providing detailed information about the disease, tools for symptom tracking, and guidance for practicing mindfulness, supporting a proactive and informed approach to daily life.
This toolkit provides information and tips to people impacted by NMOSD in Europe.
For an overview of NMOSD you can download a brochure with all information here.
NMOSD symptoms vary by person. Use this checklist to track yours.
This flyer will help guide your doctor appointments.
Be prepared for the unexpected with this NMOSD Emergency Medical Resource Card.
Follow this roadmap for helpful tips on how to become your own best advocate.
Use this resource to set daily intentions and plan for a better tomorrow.
The Guthy-Jackson Charitable Foundation is dedicated to funding research to understand the pathophysiology and biochemistry of neuromyelitis optica (NMO) spectrum disorder. They are an international organisation with representation in Europe.
Please note that this links to an external site which may not offer the same level of protection as this site. This website is not responsible for the content of any external sites.
https://guthyjacksonfoundation.org
The Sumaira Foundation (TSF) is a global nonprofit organization dedicated to raising awareness of NMOSD, MOGAD and other rare neuroimmune conditions, building communities of support for patients and caregivers, supporting research and advocating on behalf of patients.
Please note that this links to an external site which may not offer the same level of protection as this site. This website is not responsible for the content of any external sites.
https://www.sumairafoundation.org/
The Siegel Rare Neuroimmune Association (SRNA) is a not-for-profit organisation, with an international presence and representation in Europe, dedicated to the support of children, adolescents, adults and their careers with a spectrum of neuroimmune disorders.
Please note that this links to an external site which may not offer the same level of protection as this site. This website is not responsible for the content of any external sites.
https://wearesrna.org/
The non-profit association NEMOS e.V. promotes science and research in the field of NMOSD and the dissemination of current scientific knowledge in practice, in addition to organising regular information events for patients and offering opportunities to connect those living with NMOSD.
Please note that this links to an external site which may not offer the same level of protection as this site. This website is not responsible for the content of any external sites.
https://nemos-net.de
The NMO France association has the essential mission of informing and supporting people affected by neuromyelitis optic (NMO), NMO spectrum disorders (NMOSD), and other rare inflammatory diseases of the brain and spinal cord such as Myelin Oligodendrocyte Glycoprotein Antibody Disease (MOGAD).
Please note that this links to an external site which may not offer the same level of protection as this site. This website is not responsible for the content of any external sites.
https://www.nmo-france.org
The Italian Multiple Sclerosis Society (AISM) is the only organisation in Italy that addresses every aspect of multiple sclerosis (MS) and related pathologies including NMOSD, through advocating for the rights of people with MS and related pathologies, and providing services through orienting, promoting, and financing scientific research.
Please note that this links to an external site which may not offer the same level of protection as this site. This website is not responsible for the content of any external sites.
https://aism.it
EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of over 1000 rare disease patient organisations that work together across borders and diseases to improve the lives of all people living with rare disease. By connecting patients, families and patient groups, as well as by bringing together all stakeholders and mobilising the rare disease community, EURORDIS strengthens the patient voice and shapes research, policies and patient services across Europe.
Please note that this links to an external site which may not offer the same level of protection as this site. This website is not responsible for the content of any external sites.
https://www.eurordis.org/Find your local patient organisation
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The European Multiple Sclerosis Platform (EMSP) is a pan-European umbrella organisation working to ensure that more than one million people affected by multiple sclerosis (MS) in Europe have a voice in determining their own priorities.
Please note that this links to an external site which may not offer the same level of protection as this site. This website is not responsible for the content of any external sites.
https://emsp.org